heh, I live on the couch :p

I can do my puzzles/crosswords/Sudoku, throw the ball against the fireplace mantle and watch my dog try to catch it before it bounces back to me, laptops on the coffee table, phones wedged somewhere between a cushion until I need it lol.

only real time I need to get up is to let the dogs out to pee, or when I have to pee, or get food from the fridge.

read the thread title and was tempted to leave a trollish post, until I actually read the OP

best of luck man, seriously

was in this section reading threads, figured I might as well update...

oct 15 (less than an hour and a half away), marks the 1 year date of me finding out about this.

progress made?

basically none...


test after test after test. each test leads to a new test.

BUT, 21 pills a day keeps the seizures away...well...80% of the time.

gets quite embarrassing when im out at a restaurant with friends (few weeks ago) and during the course of dinner/drinks I have 5 seizures and don't even know about it until I get home and they tell me. (after waking out of one ive complete amnesia of it happening, as far as I concerned, I was just getting up from dropping something on the ground...my friends know not to tell me ive had one or else I get extremely defensive saying I didn't etc etc)

still have all my restrictions...no work, driving, scuba, shooting range, going out alone, working out/lots of physical exertion...

oct 15 2012 - 189lbs
oct 15 2013 - 158lbs due to not being able to work out etc

im supposed to be returning to work though, im no longer allowed to do my regular job, so my union has to create a job for me that accommodates to my restrictions. ive been told they've found me a job, but its just a waiting game until all the forms go through, HR talks to insurance etc, wait for my "interview" type of meeting and then return to work on a part time basis. luckily my works yard is less than 5 minutes from my house so I can just walk there.

at the rate this is going, i'll update this next year lol :p

forgot about this thread lol

2 years ago in just a few weeks.

pills range from 21-30 pills a day depending how the weeks have been.

well. sept 25th im goin in for an open craniotomy.
as its grown in size, its done damage. i need to have the cyst ripped out along with a right anterior temporal lobe resection and having to shave the hippocampus a bit(i think thats what they said about the hippocampus).
risks involved - i WILL have visual memory loss, and my left eye wont have the same strength it has now.

surgery is 70% - 80% success rate, compared to pills having a 5% - 10% success rate at stopping seizures.

recovery time is few days in an ICU, a week in a regular ward, mind blowing headaches for the next few months, and hopefully freedom after that!

while asking the dr if i can film it, he told me no. but he will take photos for me. he went on his computer and typed in open craniotomy on google and this is the video he showed me. i'll be having the same procedure, but this only shows the opening and the closing.

Holy shit dude.


Safe to say we're all pullin' for you. Best of luck.

Update

Had brain surgery on Thursday morning

Came out of it in pain beyond belief. Cried the entire first night while attempting to sleep. Morphine every hour can't even take this pain away.

Was taken out of the ICU yesterday afternoon. Regular ward now. I can't eat - surgeon told me that as he had to peel the skin back over my face, it stretched my jaw muscles to the point where I cried while trying to eat grapes.

My right eye is now swollen shut. He removed a chunk of my brain the size of your thumb.

Morphine every hour and on every 4th hour it comes with t3s.

I've the attention span of a hummingbird, and staying awake for longer than 15 minutes gives me throbbing headaches beyond belief. This is the kind of pain I would never wish upon someone else.

Can't get out of bed without someone holding my arm. My balance is fucked right now.

I know it doesn't mean much saying this as 99% of my friends don't use this site, but it's still worth me mentioning it.

I want to say thank you to my girlfriend and my best friends who've helped me through all of this and supported me along the way. Probably wouldn't have been able to do it without them.

I should be discharged on Monday hopefully. There's a guy somewhere down the hall that screams in agony shouting "kill me now". Not the most pleasant thing to hear

Hopefully this will allow me to get my life back on track and leave me seizure free for life!!!

wish you a speedy recovery!

+1, Keep on truckin'

All the the best man!

wish you a speedy and smooth recovery stewie. i can't imagine the pain you're going through, it sounds like a nightmare from hell.

but in the end, i am sure you will be glad that you had done this and knowing how painful it is, you wouldn't hesitate to make the same decision again.

keep it up!

Wow, what a shitty past few years for you... I hope you get well soon, and can move on with your life! I wish you all the best.

well, now that I'm home and bored, I figured I'd share a photo or two :)

http://s3.postimg.org/x84t0r2cz/me_scar.jpg
my sexy scar for life...as far as future women are concerned, it was a shark attack while surfing in australia! the cut goes past my hairline, so it'll always be visible.

however, my girlfriend wants me to die my hair black and take up this look...
http://s8.postimg.org/8vczkhq2t/me_zorg.jpg


trust me, this feels worse than it looks...

laying on a pillow, shift my head during the night, stretches the scalp, wake up with bloody face and pillow. yay...

and I know what your all thinking, and yes, I know I'm a stud muffin. :)

--edit--

forgot to add:

I can barely open my jaw. i can open it maybe 1 1/2 inches at most before its maxed out. i asked surgeon why, his response: "when I peeled your skin over, your jaw muscle came with it and its now overstretched. it'll take a while for it to ease up, just keep trying to chew and little by little it'll be back to normal"